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Tibetan Herbs and Parkinson’s: A Personal Success Story

October 1, 2012, is a significant anniversary date in my life. One year earlier I started taking a Tibetan herb for Parkinson’s disease. When people ask me what Parkinson’s disease (PD) is I tell them my definition is that Parkinson’s is a degenerative neurological disease for which western medicine currently has no cure.

I was diagnosed with PD in 2005. My adventure with Tibetan herbs for Parkinson’s began in June of 2011. I was having a casual phone conversation with a natural medicine doctor from Raleigh, NC. She asked me what I knew about Tibetan herbs and Parkinson’s. My answer was that I knew nothing. She suggested that I research the subject.

I did what I think most people would do with her advice. I wrote it down on a piece of paper and promptly forgot about it for three months. During that time I was struck by how powerless western medicine was over Parkinson’s disease. I had friends who were younger than me who had already left work on medical disability. I also knew six people who had deep brain stimulation surgery because of their Parkinson’s.

From my perspective, all my neurologist was able to do was to manage my medications and increase my dosages until he could no longer control the disease. With that on my mind I started researching Tibetan herbs for Parkinson’s.

At this point let me stop and say that I cannot make any direct recommendations to anyone reading this article. I cannot prescribe medicines and certainly will not tell anyone to change any direction they have received from their doctor. If anything, the story that I’m about to relate can be used as a discussion point with a neurologist.

In September of 2011 I was taking 7.5 tablets a day of carbidopa/levodopa. My Parkinson’s symptoms were pretty well under control, but I could definitely tell when the medicine was wearing off. I had to be careful about timing my medication and meals. If I was late taking a dosage or missed a meal I would become very shaky and it would be hard to concentrate, my though processes would become unfocused. If I ate too much or had a meal too long after taking my medicine I would become nauseous. I would tire easily and found that I would lose energy by the end of the day.

I started taking a Tibetan herb for PD on October 1, 2011. I did not change my carbidopa/levodopa dosage for 30 days. Over the following two months I began reducing my carbidopa/levodopa. I paid close attention to my body and did this very slowly. I continued taking the Tibetan herb daily during this time period. By January 2012 I was completely weaned off of carbidopa/levodopa. Currently, I take a maintenance dose of the Tibetan herb of only two doses a week.

Now, one year after beginning the Tibetan herb I’m excited to say that I have been free of all western medication for nine months. I still have Parkinson’s symptoms, but I feel better and more normal now than when I was taking 7.5 tablets a day of my prescribed medication. My Parkinson’s symptoms are less severe. My thinking is clearer, and I no longer get nauseous before or after meals. I also find that my stamina has improved. From my perspective, I believe that I can manage my Parkinson’s symptoms in much the same way a diabetic manages his diabetes, with diet and exercise.

My neurologist can’t explain why I am doing better on the Tibetan herb than I was on the carbidopa/levodopa. Thankfully, he is open minded enough to monitor me and not argue with my success.

NOTE: As of July 2014 the supplement has been renamed to Nerve Support 2.

66 Responses to “Tibetan Herbs and Parkinson’s: A Personal Success Story”

  1. Richard London says:

    Heidi, Please direct any questions to the Tibetan herb company directly, not through this blog. That said, when I suggest that people try the Tibetan herb I suggest that they be willing to try it for two months before they decide if it helps. The hard part is trying to objectively decide if any of the symptoms have improved.

  2. Richard London says:

    Thank you for your posting. I need to mention that my approval of your post is not an endorsement for the herbs you’ve taken. All readers are encouraged to perform their own research before taking any new medicine or herbal supplement.

  3. Richard London says:

    25/100. No mood drops, but some attention/focus issues.

  4. Richard London says:

    Their website is http://www.TibetanHerbs.com. You can contact them directly.

  5. Richard London says:

    Heidi,

    Your last sentence says it all!

    Thank you for your input.

  6. Richard London says:

    Heidi,

    Thank you for your input. It would probably be more efficient if you contacted the Tibetan Herb company directly at http://TibetanHerbs.com.

  7. Heidi says:

    Dear Tibetan Herbs Staff,

    MotherBirthe is now on her 3rd bottle of NerveSupport2 for her Parkinson’s Disease. No obvious results. Maybe some subtle improvement–I mentioned them in my other post today. (She takes Sinemet every 2 hrs so she takes NS2 first thing in the morning, and then can only wait one hour before needing a first dose of Sinemet.)

    She has avoided all the ayurvedic herbs I mentioned in my March 23rd post/query to you, except the Chavanprash, which she still uses although in reduced amounts.

    We don’t mind trying for another 3 months–and am curious for your opinion. Do you think if no obvious results, that it won’t work? Would more than 2/day be helpful? Can she resume the other ayurvedic herbs mentioned in March 23rd post, or best to still avoid while on NS2?

  8. Heidi says:

    I would like to mention a website I just learned about, fightingparkinsonsdrugfree.com. I heard Howard speak in person last week. He was officially diagnosed with Stage one PD at age 48. He used qigong to heal himself within a year. Other PD people have used his method with success–Howard and 4 others are medically diagnosed as PD free after being medically diagnosed with PD.

    There is also another website called parkinsonsrecovery.com with lots of info. A fellow named Robert Rodgers has been amateurly researching and interviewing people who are healing or managing their PD with other than Sinemet for the past ten years. (He may be charging now for access.) He has many online radio interviews. One was with a woman named Lexie who uses LDN, low-dose naltrexone. The one-hour interview had 8 stories of success, one a Norweigan MD for whom LDN got her out of a wheelchair onto bike riding.

    Mother Birthe has tried LDN at 4.5mg nightly for over a year–no results for her. She’s now trying it at 3.O mg, for some people believe dose should be proportional to body weight.

    She’s been doing the Tibetan Herbs Nerve Support 2 for 2 months. No obvious results. Her stamina is better longer into the day–she’s also been getting nutritional IV drips once a month for 3 months now (3 drips). Maybe more of the off times are shorter than they use to be–1/2 hour instead of longer. She also started supplementing with tyrosine–an over the counter amino acid supplement that’s a precursor to dopamine the same time she started the Tibetan Herbs. Overall though, have not yet been able to decrease the Sinemet.

    A ND in Australia wrote a book called “Stop Parkin’ Start Livin” and cured his stage 4 PD with cleaning up his diet and Bowens therapy, among other things. (Mother tried his aqua drops for a year–no results)

    There is a treatment called the Hinz protocol–supplementing with large doses of tyrosine and 5-HTP, taking mucuna pruriens only for L-dopa, no carbidopa. His website is neurosupport.com. It’s expensive, using his brand of products, and his procedure requires urine testing. Some Naturopathic Doctors will treat following his ideas without requiring his brand, and without urine testing. Googling something like “amino acids for Parkinson’s” yields lots of responses.

    So different things are working for different folks. It’s all trial-and-error, a lot of self-researching.

  9. ilhan aydın says:

    Hello, my father 15 years, Parkinson’s disease madopa 125 ml 3 times a day and want to get information about the Tibetan herb to use 1 ml peksol teşekürler …

  10. Richard London says:

    It was 25/100mg. I didn’t experience mood drops, but it was harder to concentrate when it was close to med time.

  11. Richard London says:

    Nerve support 2 from Tibetanherbs.com

  12. Alka says:

    Sir,
    My husband is having parkinsons since 2002. U have not mentioned which Tibetan herb had helped in parkinsons. Sinemat , pramipexole to control the symptoms but slowly the effect of medicine lasts for short time.
    please let us know which Tibetan herb is effective in parkinsons with no side effects.
    Thank u.
    Alka Kumar (wife)

  13. Heidi says:

    I see, Mr. London, that you use to take 7.5 Sinemet tablets each day. Do you remember what size (10/100, 25/100, 25/250, or some combination of) the Sinemet was? And did you experience mood drops when it was close to med time?

  14. Richard London says:

    Jake, Has she tried the Tibetan herbs that I wrote about?

  15. Jake Elias says:

    This is my first time to post a comment on this website. My wife has had Parkinson’s since about the age of 42. She has been on sinemet and pramepexole for about 8 years. We have tried many alternatives to western medicine and there have certainly been some that have been a great help. It seems lately that dyskinesia is wanting to set in which is associated with a lot of pain and muscle stiffness. We are very interested in any treatment alternative that would allow her to reduce or wean off the conventional medications she is on. We are anxious to here from anyone that has had success with this

  16. Tibetanherbs.com says:

    Dear Heidi,
    Please consider having your Mom take just Nerve Support 2 for a few days.